on sunday I closed my facebook account and it will stay that way I also decided to take a break from online activities texting ect. why you may ask the reasoning is this after the radio show I had comments on my blog calling me a cheat a liar fake and comparing me to people who fake cancer to get money for drugs weddings and other things,three days into my unplug and now I am being told i am punishing friends for actions of a few, I do not see it this way but ok , I am trying to regroup through extreme pain both physically and emotionally as well as re evaluate whether i want or need to share my life or story anymore, i realize this may seem selfish to others but i need to think about what is best for me for a change, things are changing for me rapidly and I am not in control of all of it, in addition to all this am dealing with old issues from my past which are bringing up a lot of emotions , I did not expect all of this nor did i ask for it so am trying to deal with it best way i know how and that is alone and unplugged

This entry was posted in my stories of life. Bookmark the permalink.

4 Responses to unplug

  1. Jenny Coss says:

    I will be sorry not to hear from you but I perfectly understand. People who are saying these things to you — whoever they are — have no idea what you are going through. I appreciate that you have been willing to share the ups and downs of your journey with people. Few are willing to share such intimate feelings and thoughts about themselves. You have done that, and unfortunately, the ignorant and the cruel have spouted off and hurt you with their thoughtless comments. I am so sorry. Please know that I pray for you daily, and ask God’s angels to be with you to escort you from this world to the next. Jenny

  2. I love you and understand, just know I light a candle for you daily in my prayers and meditations and will always be here for you. ~Love you endlessly, Lynie~

  3. butilookgood says:

    Yes, it is rather hard for people to understand that the medical community doesn’t have it all figured out for everyone and in every case. In fact, I see more often than not, people with chronic illness being told they cannot be helped. When we hear the diagnosis, cancer or any other illness, we often think that all people with cancer or all people MS, Lyme Disease, Lupus, etc are in the same stages, have the same symptoms, respond the same, have the same amount of permanent damage, etc.

    The truth is (as you touched up), you have already exceeded expectations and prognosis time after time and year after year. Odds have been against you, your whole life. With your courage and determination you have beat so many odds and touched so many lives with yours.

    I, too, wish there was something the doctors could do for you now!! I don’t want to see you hurting and I don’t want to say goodbye! Through it all, I know you and know you are doing your best to keep fighting for each week, each day, each hour, each breath and I am doing my best to cherish what time we have left with you. LOVE you!!

  4. butilookgood says:


    As you know, I have been attacked, called a liar and a cheat so many times as well. I KNOW how much it hurts and how much it puts me into a tailspin! I never asked for this life! I DON’T WANT IT!

    I am a workaholic! Started my first job at 10 years old and I have 3 college degrees. I hate not being able to work. I loved the interaction with people, sense of accomplishment and a paycheck. In fact, I would be making at least $90,000 a year by now had I not lost my health and career. Instead, not only do I lose out on the income, just my medical bills alone are more than twice my so called disability income that people think we disabled people get as “fun money.” Moreover, now my life consists of therapies, medical tests, appointments, insurance claims and struggling get my food or a shower.

    Your emotional and physical health is number one! If these things are creating more stress then you have to do what you have to do! So, take a break, regroup or whatever you need to do. But don’t give them the power over you. You don’t have to do more radio programs, etc. but don’t let them rob you of enjoying your Facebook and blog.

    I don’t say this lightly! You can ask Wayne. I have collapsed, weeping in horrific pain after horribly untrue comments have been made about me. But I too must realize and OWN that I know who I am and God knows who I am and that is all that matters.

    You also have many amazing and wonderful friends who love you like a brother. They visit you, spend time with you and share their lives with you. Of course, even we say stupid things from time to time. We are not perfect. But we mean well and we love you so much!

    Sher Bear Hugs!!


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s